Links to Online Resources
These links to other websites are intended to acquaint you with other
sources of neurological information. CNI does not endorse any of the material
on these or other websites and does not warrant the accuracy or completeness
of any information that might be obtained by following these links.
Do you have a favorite website that we should list here? Send
us an e-mail with the link.
Neuroscience Websites
American Academy of Neurology (AAN):
News and information about neurological health, research and emerging
therapies, as well as links to Neurology Journal.
Journal Watch Neurology:
Edited and reviewed by more than 80 physicians, JWatch regularly combs
180 medical journals for important findings in Neurology.
Neurosurgery://On-Call
offers Health Resources on a variety of neurological diseases, patient
resources, and a general overview of neurosurgery. See their web
guide for help locating other neuroscience and neurosurgical resources,
indexed by specific clinical topics.
National Institute of Health
provides health information, including links to the NIH Health Information
Index, which is an A-Z subject guide. It also links to MEDLINEplus,
a service of the NIH National Library
of Medicine.
National Network of Libraries
of Medicine provides access to biomedical information to health
professionals and the public. The Health Information page also contains
links to other health-related sites.
Neurosciences on the Internet
is a searchable and browseable index of neuroscience resources available
on the Internet, including neurosurgery.
Whole Brain
Atlas is an online information resource for brain imaging that
integrates clinical information with multimodality imaging data.
Yahoo
- Health:Medicine:Neurosciences is a vast collection of links
related to the neurosciences.
Disease-Specific Sites
A few websites are listed below for the following neurological diseases.
You can also go to the Links Page on each CNI program website for a more
complete list of related websites.
Central Pain Syndrome Alliance
is for people affected by Central Pain Syndrome (CPS), which is also known
as Thalamic Pain Syndrome, Dejerine-Roussy Syndrome, Posterior Thalamic
Syndrome, Retrolenticular Syndrome, Central Post-Stroke Syndrome, and
often found under Neuropathic Pain.
HealingWell.com
has information on a variety of different conditions as well as general
health information.
Brain Aneurysm
Brain Aneurysm Foundation
provides support networks and educational resources to raise public awareness
regarding early detection and treatment of brain aneurysms.
www.BrainAneurysm.com
is provided by the American Society of Interventional and Therapeutic
Neuroradiology (ASITN). This site covers symptoms, diagnosis, treatment
options, patient stories, and clinical research information.
Brain Tumors
American
Brain Tumor Association
This Des Plaines, Illinois,
organization provides information and funds brain tumor research. ABTA's
website now includes an online version of the booklet, "A
Primer of Brain Tumors"
The
Brain Tumor Society
Contains basic information about
brain tumors, FAQs, resources for health professionals, events and conferences,
and family support advice. The website features an extensive
list of links to research and support organizations.
National Brain Tumor
Foundation
Based in San Francisco, California, this organization provides information
and funds research. A
variety of publications, newsletters, fact sheets and information
is free to patients and family members and can be obtained by viewing
the PDF file online or by calling 1-(800)-934-CURE (2873).
Cochlear Implants
Alexander Graham Bell Association
for the Deaf and Hard of Hearing: This site provides information
that adheres to AG Bell's mission of focusing specifically on children
with hearing loss, providing ongoing support and advocacy for parents,
professionals and other interested parties. Colorado
Chapter website
Hearing Loss Association of America (formerly
known as SHHH – Self-Help for Hard of Hearing People) has a mission
to open the world of communication to people with hearing loss by providing
information, education, support and advocacy. Their website provides
information regarding advocacy, online resources, their conventions,
publications, chapters and state associations and access to a listserv
for parents of hard of hearing children.
Listen Foundation The
LISTEN Foundation, located in Englewood, Colorado, has supported families
who would otherwise not have access to the equipment and therapy that
their children need in order to become listening, speaking adults who
can then reach their full potential as productive members of society.
The great advances in hearing aids, cochlear implants, and medicine allows
the therapists to enhance the child's useable hearing to achieve these
results.
National Institute on Deafness
and Other Communication Disorders: The
NIDCD supports human communication research. This site provides health
information, strategic planning, intramural and research funding
as well as other information about NIDCD.
Epilepsy
American Epilepsy Society
promotes research and education for professionals dedicated to the prevention,
treatment and cure of epilepsy.
Epilepsy Foundation:
A national volunteer organization that works for people affected by seizures
through research, education, advocacy and service. Goals include
broadening and strengthening of research, providing individuals and families
with easy access to reliable information, and assuring access to appropriate
medical care for those affected by seizures.
Epilepsy Foundation of
Colorado: has information about epilepsy, seizure first aid, support
groups, and resources.
Movement Disorders
We Move - Worldwide Education and
Awareness for Movement Disorders: This site provides extensive
information and linkage libraries on many different movement disorders
including Parkinson's disease, dystonia, essential tremor, restless leg
syndrome, spasticity and Tourette's Syndrome.
The Movement Disorders
Society: This site provides access to subscribing to the Movement
Disorders Journal and applying for grants as well as information on videos
for purchase, memberships and meetings.
Sites about Specific Movement Disorders
Dystonia Foundation:
This site provides information on dystonia, treatments, support groups,
on-line support groups, articles and a variety of other dystonia-related
material.
Guillain-Barrœ Syndrome Foundation
International, P.O. Box 262, Wynwood, PA 19096 610-667-0131. "Support,
Education, Research" offering emotional support, written information,
visits to patients when possible.
Huntington's Disease Society of America:
This site provides information about Huntington's Disease, research, grants,
education and news as well as information about HDSA chapters across America.
National Ataxia Foundation
Its primary mission is to encourage and support research into Hereditary
Ataxia, a group of neurological disorders which are chronic and progressive
conditions affecting coordination.
National Parkinson's Disease Foundation:
This site provides information about Parkinson's Disease, news, events,
clinical studies, resources, a library of articles, and an extensive links
page.
Parkinson's Association
of the Rockies : This site provides detailed information on support
groups in Colorado and Wyoming as well as frequently asked questions regarding
PD and Young Onset Parkinson's, a extensive online resource list and an
online library.
The Society for PSP (Progressive Supranuclear
Palsy) Provides information, education, support, and advocacy
to persons diagnosed with PSP, their families, and caregivers. The Society
for PSP educates physicians and allied health professionals on PSP and
how to improve patient care.
Restless Leg Syndrome Foundation
Through education, advocacy and research, the Restless Legs Syndrome
Foundation is dedicated to improving the lives of the millions of men,
women, and children who suffer from restless legs syndrome (RLS).
ST/Dystonia
This organization provides a yearly symposium in various areas of the
USA and Canada featuring the latest medical/non-medical advances, a quarterly
newsmagazine, compendium of useful articles referring to various types
of treatment, and awareness/publicity programs.
Tourette Syndrome Association,
Inc. This site provides extensive information
about Tourette Syndrome, a glossary, frequently asked questions, discussion
of myths about Tourette Syndrome, medical and scientific information and
a chat room.
Neuromuscular Disorders
The Neuropathy Association
Provides support through education and sharing information and experiences
related to peripheral neuropathy. Also supports research into the causes
and treatment of peripheral neuropathies.
Myasthenia Gravis Foundation of
America, Inc. Provides patient services, public information,
medical research, professional education, advocacy and patient care.
Stroke
CNI Stroke Program.
National Stroke Association (NSA): This
site provides extensive information about stroke, stroke prevention
and support for survivors and caregivers. The NSA website also provides
a links library and ordering information for brochures and pamphlets.
American Stroke Association
(ASA): This site
provides information on warning signs and treatments as well as recent
articles about stroke.
Brain Aneurysm Foundation: http://www.bafound.org
Children's
Hemiplegia and Stroke Association: http://www.chasa.org
Hazel
K. Goddess Fund for Stroke Research in Women: http://www.thegoddessfund.org
Internet
Stroke Center: http://www.strokecenter.org
Medline
Plus (Stroke): http://www.nlm.nih.gov/medlineplus/stroke.html
Medline
Plus (TIA): http://www.nlm.nih.gov/medlineplus/transientischemicattack.html
National
Aphasia Association: http://www.aphasia.org
National
Heart, Lung and Blood Institute: http://www.nhlbi.nih.gov
National
Institute of Neurological Disorders and Stroke (NINDS): http://www.ninds.nih.gov
Rocky
Mountain Stroke Association: http://www.strokecolorado.org
Stroke
Heroes Act F.A.S.T.: http://www.maclearinghouse.com/catalogpageHDSP.htm
Support Organizations
Many support organizations exist for each neurological disease. Here
are some general support sources.
Family
Caregiver Alliance
Family Caregiver Alliance supports
and assists caregivers of brain-impaired adults through education, research,
services and advocacy.
Well Spouse
Foundation
Support for husbands, wives and partners of the chronically ill and/or
disabled.
Hospitals
Swedish Medical Center
is the hospital adjacent to the Colorado Neurological Institute and
to RMNA's main office. All CNI physicians have privileges at Swedish.
Craig Hospital is
the rehabilitation hospital adjacent to CNI.
CNI Member Websites
Colorado Brain and
Spine Institute is the neurosurgical practice website
of J.
Paul Elliott, MD, medical director of the CNI Neurotrauma Center,
and G. Alexander West, MD.
Edward B. Arenson, MD
is the personal website of Dr. Arenson, director of CNI's Center for
Brain & Spinal Tumors.
INVISION IMAGING and
Radiology Imaging Associates, P.C. (RIA) offers
the most comprehensive array of diagnostic outpatient imaging services
in the Denver area, which include interventional radiology, MRI, ultrasound,
CT scans, bone densitometry, coronary heart artery calcium scoring,
pain management, and diagnostic x-ray.
Rocky Mountain Ear Center, PC is the practice website of David
C. Kelsall, MD,
medical director of the CNI Center for Hearing and Rocky Mountain Cochlear
Implant Center.
Voice & Swallow
Institute of Colorado, LLC is the practice website
of André L.
Reed, MD, medical director of the CNI Voice and Swallow Disorders
Center.
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