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CNI Movement Disorders Center
Education & Information
Helpful Links
Ataxia
National Ataxia Foundation
The primary mission of this foundation is to encourage and support research into Hereditary Ataxia, a group of neurological disorders which are chronic and progressive conditions affecting coordination. www.ataxia.org
Atypical Parkinson's: MSA and PSP
The Society for PSP (Progressive Supranuclear Palsy)
Provides information, education, support, and advocacy to persons diagnosed with PSP, their families, and caregivers. The Society for PSP educates physicians and allied health professionals on PSP and how to improve patient care. www.psp.org
Dystonia
Dystonia Foundation
This site provides information on dystonia, treatments, support groups, on-line support groups, articles and a variety of other dystonia-related material. www.dystonia-foundation.org
ST/Dystonia
This organization provides a yearly symposium in various areas of the USA and Canada featuring the latest medical/non-medical advances, a quarterly newsmagazine, compendium of useful articles referring to various types of treatment, and awareness/publicity programs. www.spasmodictorticollis.org
Essential Tremor
International Essential Tremor Foundation
This site has general information about essential tremor and people to contact about support groups. You can also order an introductory packet of information. Includes the names of physicians in the U.S. and worldwide. www.essentialtremor.org
Tremor Action Network (TAN)
The mission of this nonprofit organization is to spread awareness of essential tremor by advocating for a cure through research. www.tremoraction.org
Huntington's Disease
Huntington's Disease Society of America
This site provides information about Huntington's Disease, research, grants, education and news as well as information about HDSA chapters across America. www.hdsa.org
Huntington's Disease Society of America Rocky Mountain Chapter
www.hdsarockymountain.org
The Huntington's Disease Society of America's National Youth Alliance (NYA)
The National Youth Association is for people ages thirty and under with Huntington's disease in their lives. This could be a pHD (person with HD), somebody at risk, a caregiver, a friend, etc. Their goal is to support each other and fight to be the first generation WITHOUT Huntington's. www.huntingtondisease.tripod.com/nya/
Huntington Study Group (HSG)
A non-profit group of physicians and other health care providers from medical centers in the U.S., Canada, Europe and Australia, experienced in the care of Huntington patients and dedicated to clinical research of Huntington's disease. www.huntington-study-group.org
Myoclonus
Myclonus Research Foundation
This site provides information about myclonus, causes, treatments, self-help as well as the sale of an "Overview of Myoclonus" video. www.myoclonus.com
Movement Disorders
American Academy of Neurology
This site provides information about AAN, neurology and resources available through the AAN. www.aan.com
The Movement Disorders Society
This site provides access to subscribing to the Movement Disorders Journal and applying for grants as well as information on videos for purchase, memberships and meetings. www.movementdisorders.org
WE MOVE- Worldwide Education and Awareness for Movement Disorders
This site provides extensive information and linkage libraries on many different movement disorders including Parkinson's disease, dystonia, essential tremor, restless leg syndrome, spasticity and Tourette's Syndrome. www.wemove.org
Movement Disorder Virtual University, by WE MOVE
Provides movement disorder news, resources and educational activities. Note their multimedia center for presentations about Parkinson's and other diseases. www.mdvu.org
Parkinson’s Disease
Colorado Parkinson Foundation
An affiliate chapter of the National Parkinson Foundation with headquarters in Colorado Springs and provides the Jeanne Taylor Parkinson Support Group. www.co-parkinson.org
National Parkinson's Disease Foundation
This site provides information about Parkinson's Disease, news, events, clinical studies, resources, a library of articles, and an extensive links page. www.parkinson.org
Parkinson's Association of the Rockies
This site provides detailed information on support groups in Colorado and Wyoming as well as frequently asked questions regarding PD and Young Onset Parkinson's, an extensive online resource list and an online library. www.parkinsonrockies.org
Recently Diagnosed with Parkinson's
This excellent and informative blog was developed and is administered by Diane Cook and Betsy Vierck, both of whom were diagnosed with PD in 2009. Their goal is to provide a forum for patients who are recently diagnosed with PD and who want to learn about their disease and how to minimize its toll. www.recentlydiagnosedwithpd.org
World Parkinson Congress
The World Parkinson Congresses provide an international forum for the latest scientific discoveries, medical practices and care initiatives related to Parkinson's disease. By bringing physicians, scientists, nurses, rehab professionals, care partners and people with Parkinson's disease together, we hope to create a worldwide dialogue that will help expedite the discovery of a cure and best treatment practices for this devastating disease. www.worldpdcongress.org
Restless Leg Syndrome
Restless Leg Syndrome Foundation:
Through education, advocacy and research, the Restless Legs Syndrome Foundation is dedicated to improving the lives of the millions of men, women, and children who suffer from restless legs syndrome (RLS). www.rls.org
Tourette Syndrome
Tourette Syndrome Association, Inc.
This site provides extensive information about Tourette Syndrome, a glossary, frequently asked questions, discussion of myths about Tourette Syndrome, medical and scientific information and a chat room. www.tsa-usa.org
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